By Lin Parkin
August 16, 2013
Audiobook producer Bob Deyan, co-owner of Deyan Audio, is on a mission.
ALS (amyotrophic lateral sclerosis) is also known as Lou Gehrig's disease. It is a terminal motor neuron condition that has no cure and there is little that can be done to slow its progression.
It commonly takes over leg muscles first, then moves to the arms, then chest, eventually making it difficult or completely eliminating the suffers' ability to speak, chew, or swallow.
Unable to function, the muscles in their bodies weaken and atrophy making simple day-to-day activities increasingly difficult. When breathing muscles become affected, ultimately, a permanent ventilator will need to be used in order for the sufferer to survive.
Bob Deyan is living with ALS. Join us in today's VOX Daily to learn about Bob's story and find out how you can help him in his fight against this disease.
Bob Deyan has been in the audiobook business for 25 years. At the beginning of 2013 Bob was the picture of success. Happily married to his wife and business partner Debra Deyan, they were operating their own successful audiobook production studio.
Together he and Debra built Deyan Audio from the ground up. Originally having actors record their lines from a closet loaded with their clothing to absorb background noise, by the time the calendar rolled over to 2013 they were successfully employing nearly 1500 voice actors, 120 sound editors, and over 60 recording engineers in their studio.
Then in February of 2013, at a "party to end all parties" red carpet event honoring the Audiobook industry for the Grammy's, Bob started noticing an unusual pain in his leg. Many tests and a multitude of doctors later, he received the devastating news that he had ALS.
Several months later, at what was perhaps the lowest point after his diagnosis, he received word that he would be honoured with the Lifetime Achievement Award at the 2013 Audie Awards. During the show a videographer followed Bob and Debra throughout their emotional experience at the Audies. With that they've put together a funny and moving short documentary about his journey through childhood, meeting Debra, how they started their business, to learning that he had ALS.
Inspired by the recognition, love, and support from his peers Bob is fighting back. He is setting out on a mission to bring an end to ALS. While he is still able, he is going to use his voice to raise awareness about ALS and try to raise one billion dollars to go toward research, maintenance care, and ultimately a cure.
To learn more about Bob's story and to join him in this fight, visit: http://alsbob.com/
Bob and Debra's friends and colleagues have set up a short-term medical fundraiser to help them with the astronomical costs to manage this disease.Visit: www.YouCaring.com/bobsalsfight
With the help of our incredible community, along with colleagues, friends, and family we can help Bob win this fight!
All the best,
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